Monday, 20 October 2014

I'm back and ready to face the treatment head on!

Hi All,

It's been a while and I shall explain why. Over the past few months I have been undergoing a medication change because the ones I was originally taking just weren't doing their job properly and I was beginning to suffer on a big scale. So after a trip to the Rheumatologist and GP after GP it was decided that I needed to begin cytotoxic therapy in order to keep the disease in check. So I have begun the journey into the land of chemo and it has not been a fun ride.



Friday, 3 October 2014

#PurpleFuzz........Accept the challenge and help me raise awareness

Hi All,

As it's Lupus Awareness month I am coming to you with a request and a challenge. In case you don't know, the recognised charity colour for lupus is purple, so I have wanted to utilise this colour and come up with a fun way to raise awareness and much needed money for Lupus UK! I have done the charity sponsored things before so I wanted to do something a little different and a little fun....we all could use a giggle at the end of the day. I also wanted to do something that would penetrate social channels too.........well who doesn't love a bit of Facebook humiliation.


So here is what I have come up with and I need all of your help to bring it to life!

#PurpleFuzz fun!

So here is what I am proposing and I have started it all off today! I am challenging everyone to donne some purple hair this month.......don't worry it can be a wig....and take a selfie to be displayed across your social channels.

Now, this can be any hair on any part of the body as Lupus affects the entire body....but let's keep it clean people!! Although a merkin would be very amusing. Once you have uploaded your picture, tag in and nominate your friends to do the same using the #PurpleFuzz and donating to my just giving page where all the money goes directly to Lupus UK!

That is it. Let's see how many people we can reach! oh and don't forget you can upload your photos to the Wolf and Me's Facebook page also!

Love Cass xx

Wednesday, 1 October 2014

Coping with the dreaded flu season......or not as the case may be!

Hi All,

It's October and that only means one thing.........it is Lupus awareness month! It seems strange to me that I didn't know anything about MCTD at all until recently and here I am living with it. It is a slightly disconcerting feeling but at least I do have answers and that accounts for more than you know. So this month I am going to be blogging a lot more, get back into the swing of it because I have missed you all and missed this side of me too. Also don't forget to enter the giveaway...ends soon!


Tuesday, 16 September 2014

Sometimes we need a break........ IT'S TIME FOR A GIVE AWAY

Hi All,

Firstly I would like to apologise for the months break! Seriously, I really apologise.....I needed the time to heal as I have had the mother of all flare ups to deal with. If you have never experienced a transition between medications...then bide my words....they are neither fun or pretty......certainly not pretty when you can't lift the hair brush to your hair.

So to welcome me back into the world of the living I am running a giveaway! It is time to let the fun begin and this one is open worldwide....I am mildly over excited about this! This time you could be in with the chance of winning this LUPUS SUCKS T Shirt from zazzle.com



Friday, 15 August 2014

The Reality of my Review Days ...What is the Next Step?....Part 2

Are we all ready for part 2....this is where the fun really begin....

I am still in the waiting room...

I have now been here for half an hour. I forgot my book which is extremely frustrating as I am now bored out of my brains. I do enjoy the people watching though! One gentleman has run into someone he used to work with years ago, it's nice to see an old connection between two people come to life again. It makes everything seem a little more positive....bodies can fail but connections are always real.


The chairs are seriously uncomfortable too! For a rheumatology clinic, where we all suffer from arthritic conditions, they really should reconsider their furnishings! By the time my name finally gets called my bottom is so numb I have to giggle - a nervous giggle. Big deep breath...here we go!

Thursday, 14 August 2014

The Reality of my Review Days ...What is the Next Step?....Part 1

Hi All,

So it's that time of year again when the needles are a plenty and the heart palpitations are relentless....the dreaded hospital review....and guess what? This time I faced it alone! I had my big girl pants on yesterday, took a deep breathe and got stuck in....well I might as well right?

So there I am at 8am, no make up on in case they want to check my skin, no nail varnish on (a cardinal sin in my book) because my nails have been showing signs of immune system damage, and I am wearing really old clothes as I can't really be bothered dressing up nicely! I feel positive even though I am pretty sure, as with all these things, that my body is on a mission to bring me down! This lasts until I get the bus....


Friday, 8 August 2014

An Honest Look at Diagnosis

Hi All,

I have been reading a lot of interesting articles of late about dealing with diagnosis; great articles, but ask yourself if you can ever be prepared to find out you will never be well again. Take a second and really consider that notion. You know you are not well that is a given...why else would you be sat in a hospital room, you know the news is not going to be great so you have prepared yourself which probably involved the words "you will get through this"....then the moment comes when you find out that you simply wont get better...for every day of the rest of your life you are going to be ill.