Thursday, 17 July 2014

CNS Lupus...Or As I Call It....Where Did My Mind Go.....

Hi All,

So I have been having fun with my memory this week...we are not particularly friendly at the moment...nor are we on speaking terms...ever since I found myself in the men's toilets at work because I couldn't make out the signs on the door. Yes that is correct...the little lady sign did not make any sense to me and then again neither did the men's....so then I tried to remember if the ladies was the right door or the left....I chose left.....it was wrong.


Monday, 14 July 2014

My Face is Burning and Noises Hurt My Ears

Hi All,

It's time for the weekly instalment from lupus land....I think lupus land is going to be my favourite phrase this week. Here we go right into another flare up! I am pretty sure that this time it is the lupus flaring up and not the scleroderma,but who knows. Whatever it is I have woken up to a familiar burning pain in my face that can mean only one thing.....the butterfly rash is back. Firstly and off topic...why would you name an awfully painful rash after a beautiful butterfly...yes I know it's the shape of it...but still it is a bit mean on the poor butterflies. Here is the only photo I shall be taking of my face like this....I hate it but it's important to show the world what it's really like!
Before

After

Monday, 7 July 2014

Moving forward, plodding on and grabbing onto that light at the end!

Hi All,

How have you all been? So now that you know that Cass 2.0 has landed, I felt it was the right time to look at how I have chosen to live my life over the past few weeks. I have realised that everything in life is not about "trying" to make yourself happy, it is about learning how to just BE happy. Now as I write this I am in the most intense nerve pain I have ever experienced in my legs...like hitting your funny bone over and over again. So being happy is not easy right now....being miserable, uncomfortable, grumpy and well sad is very very easy...so what on earth do I do to maintain my happiness?


Tuesday, 1 July 2014

What does change actually mean?

Hi All,

It's been a while because I needed a little me time....and because I am doing some changing. Now when I say this to others their response is "but you don't need to change?". So first of all I think it is important to state what I mean by change here. Change is not about making differences to my integral being...I am still the same person, I have the same beliefs, I have the same principles. What I am addressing here is changing my thought processes, functionality within my thinking and learning new communication skills. I am undertaking this because I have been very lost since being diagnosed with MCTD and that has meant that I have lost a lot of things that are dearly important to me.


Monday, 23 June 2014

Top Tips for Coping with Dental Problems and Lupus

Hi All,

Who hates the dentist??? Well I would be the first one with my hands firmly in the air! I cannot stand going to the dentist, it's worse than going to the hospital and we all know how nasty an experience that can be. There is something about the smell, the noises and the waiting rooms at dental practices' that create fear...at least they do in me. Then there is the simple fact that I am terrified of injections in my mouth. I am fine with injections anywhere else and let's face it, with the amount of blood tests etc we are all pretty used to needles. But in my mouth...NO NO NO.


Wednesday, 18 June 2014

My top tips for really resting

Hi all,

As you know I've been through a rough time with what I have aptly named the foot of death! It's the only word for it, it has been a painful appendage for well over a week now. So I have been learning how to really rest it.


Friday, 13 June 2014

3 More Positives to be Found From Living With Lupus

Hi All,

Many of you will have seen my post last week about all the positives that can be found fro negative situations...well this is the second instalment. I want to share with you the positives that I have found to my life, in order to hopefully help you or make you see that positives really can be found anywhere. So here it is and it's even more important that I remember this this week as physically it has been a tough week.