Wednesday, 1 October 2014

Coping with the dreaded flu season......or not as the case may be!

Hi All,

It's October and that only means one is Lupus awareness month! It seems strange to me that I didn't know anything about MCTD at all until recently and here I am living with it. It is a slightly disconcerting feeling but at least I do have answers and that accounts for more than you know. So this month I am going to be blogging a lot more, get back into the swing of it because I have missed you all and missed this side of me too. Also don't forget to enter the giveaway...ends soon!

Tuesday, 16 September 2014

Sometimes we need a break........ IT'S TIME FOR A GIVE AWAY

Hi All,

Firstly I would like to apologise for the months break! Seriously, I really apologise.....I needed the time to heal as I have had the mother of all flare ups to deal with. If you have never experienced a transition between medications...then bide my words....they are neither fun or pretty......certainly not pretty when you can't lift the hair brush to your hair.

So to welcome me back into the world of the living I am running a giveaway! It is time to let the fun begin and this one is open worldwide....I am mildly over excited about this! This time you could be in with the chance of winning this LUPUS SUCKS T Shirt from

Friday, 15 August 2014

The Reality of my Review Days ...What is the Next Step?....Part 2

Are we all ready for part 2....this is where the fun really begin....

I am still in the waiting room...

I have now been here for half an hour. I forgot my book which is extremely frustrating as I am now bored out of my brains. I do enjoy the people watching though! One gentleman has run into someone he used to work with years ago, it's nice to see an old connection between two people come to life again. It makes everything seem a little more positive....bodies can fail but connections are always real.

The chairs are seriously uncomfortable too! For a rheumatology clinic, where we all suffer from arthritic conditions, they really should reconsider their furnishings! By the time my name finally gets called my bottom is so numb I have to giggle - a nervous giggle. Big deep we go!

Thursday, 14 August 2014

The Reality of my Review Days ...What is the Next Step?....Part 1

Hi All,

So it's that time of year again when the needles are a plenty and the heart palpitations are relentless....the dreaded hospital review....and guess what? This time I faced it alone! I had my big girl pants on yesterday, took a deep breathe and got stuck in....well I might as well right?

So there I am at 8am, no make up on in case they want to check my skin, no nail varnish on (a cardinal sin in my book) because my nails have been showing signs of immune system damage, and I am wearing really old clothes as I can't really be bothered dressing up nicely! I feel positive even though I am pretty sure, as with all these things, that my body is on a mission to bring me down! This lasts until I get the bus....

Friday, 8 August 2014

An Honest Look at Diagnosis

Hi All,

I have been reading a lot of interesting articles of late about dealing with diagnosis; great articles, but ask yourself if you can ever be prepared to find out you will never be well again. Take a second and really consider that notion. You know you are not well that is a given...why else would you be sat in a hospital room, you know the news is not going to be great so you have prepared yourself which probably involved the words "you will get through this"....then the moment comes when you find out that you simply wont get better...for every day of the rest of your life you are going to be ill.

Wednesday, 30 July 2014

5 Things I Want You To Understand About My Life With Lupus

Hi All,

I am going to be stepping up the blogging from now on...I have a bit more time in the evenings and life has somewhat settled down. So I will be back with vengeance and continue on with my mission to begin a new life as open and honest as possible about the driving force that is Lupus....oh the joy!

Thursday, 24 July 2014

Live For What Soothes The Soul and Other Musings

Hi All,

I seem to only be posting weekly now, I shall have to get better at that so my apologies. The trouble is it is just so damned hot at the moment, my energy levels are at zero and when you are writing all day coming home to write is not really working right now. Maybe once this heatwave is over I can get back to the serious daily posts....not the subject of the posts....just the regularity of them.